The month of April is for me generally a busy month. Easter, my sisters birthday and mine to
boot.
However, in the wider world of the
Society it has also been a busy month.
The first great event was the publication of ‘Life after
Encephalitis’ by the Society’s own CEO: Dr Ava Easton.
‘Life
After Encephalitis provides a unique insight into the experiences of those
affected by encephalitis, sharing the rich, perceptive, and often powerful,
narratives of survivors and family members. It shows how listening to patient
and family narratives can help us to understand how they make sense of what has
happened to them, and also help professionals better understand and engage with
them in practice. The book will also be useful for considering narratives
associated with brain injuries from other causes, for example traumatic brain
injury. Life After Encephalitis will appeal to a wide range of people:
professionals working in neurology and rehabilitation, and also to and
survivors of encephalitis, their families, and carers.’
I think some are still available via the Society, click
here.
The second bit of news relates to one of the Society’s
Ambassadors, Aliki Chrysochou who has released her first album ‘Reflections’,
and it is available via iTunes, Amazon and Goggle play.
The third bit of Society news has been the lunch of the new
Team Encephalitis Volunteers….yeah!!! I
had a lovely phone call with Philly Chapman about the scheme and the training
modules that I would have to undertake. Just
lasy week, sure enough I had an email through linking the courses and Mod1:
Understanding Volunteers. Covers basic
information on the role (inc all the usual boring stuff: H&S), and a few
documents for me to download and read through.
Just about finished it, and hopefully I will be allowed access to the 2nd
Module soon. This is all part of the new scheme that the Society is running, with the aim of increasing the work the Society does in arising awareness and support. I am mad keen on this having over the last few years raised money and now wish to move onto a little more of a proactive role.
Finally, a mention to Jon Ainley a member of staff at the Society's HQ who is riding a bike from HQ in Malton, Yorks to Abergavenny, Wales - some 270miles. Info and sponsorship details found here: Jons Big Bike Ride
Finally, a mention to Jon Ainley a member of staff at the Society's HQ who is riding a bike from HQ in Malton, Yorks to Abergavenny, Wales - some 270miles. Info and sponsorship details found here: Jons Big Bike Ride
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